How To Bank Your Brain
As members of the Brain Bank team, we realize that choosing to participate in this program may be a difficult decision even if your family member is an organ donor. We are
sensitive to your concerns and are here to help you with this decision.
Note that once a person is diagnosed with dementia, the only organ he or she can donate is the brain.
Participants must be pre-registered so it is important to plan ahead as a comprehensive application must be completed and medical records must be collected, especially from the neurologist and/or other specialists who made the initial diagnosis. This process takes time, but the information is necessary for the neuropathologist to determine the final diagnoses in each case and also to provide supporting information for research. Upon the death of the patient, a final pathology report will be provided to the family, and the patient's physicians and the brain tissue will become available to researchers worldwide.
At present, the only way to get an accurate diagnosis of Alzheimer's disease or related dementia disorders is a brain autopsy at the time of death. The diagnoses are a critical piece of your family's medical history and will become important to your children and grandchildren as new treatments become available.
To speak with someone more about the State of Florida's Brain Bank, look for your county in the list below and just make a call to the contact person in that service area. We will be glad to answer any questions you may have to help you feel "right" about your decision.
Florida Brain Bank Service Areas
SOUTH FLORIDA (WIEN):
Jupiter north to Key West, and to Naples and Ft. Myers. Includes: Martin, Palm Beach, Broward, Miami-Dade, Monroe, Collier, Lee, Leon, Hendry, Glades, Charlotte, Desoto, Highlands, Hardee, and Citrus counties.
Dr. Maria Greig-Custo
Brain Bank Coordinator
Wien Center Memory Disorder Clinic
Mount Sinai Medical Center
4300 Alton Rd
Miami Beach, Fl 33140
305-674-2018 or 305-674-2543 ext. 50728
CENTRAL FLORIDA (ADRC):
Alachua, Brevard, Hernando, Hillsborough, Indian River, Marion, Lake, Manatee, Okeechobee, Orange, Osceola, Pasco, Pinellas, Polk, Putnam, Sarasota, Seminole, St. Lucie, Sumter, and Volusia counties.
Chief of Operations and Brain Bank Program Manager
Alzheimer & Dementia Resource Center
1506 Lake Highland Drive
Orlando, Florida 32803
407-843-1910 Ext. 308 or 800-330-1910 Ext. 308
- Known voids in the Central, South and North Florida regions:
Calhoun, Gulf, Gadsden, Liberty, Franklin, Wakulla, Jefferson, Madison, Taylor, Hamilton, Suwannee, Columbia, Baker, Nassau, Clay, St. Johns, Flagler, Lafayette, Dixie, Gilchrist, Bradford, Union, and Levy counties.
- When a call is received from one of these counties, the closest service area will provide them with full Brain Bank services.